De-identifying text with human participant data is challenging due to its unstructured and sensitive nature, requiring careful measures for safe and ethical sharing. Here are eight essential steps to minimize re-identification risks while preserving reusability.
Data Ethics
The informed consent process is a central component of the ethical conduct of research with human subjects overseen by an Institutional Review Board (IRB). Crafting compliant consent forms with permissive language broadens the shareability and usability of research data. Incorporating considerations for data sharing and potential reuse into the informed consent process is crucial to preempt future complications and adverse outcomes, all while meeting funders' and publishers' increasing data sharing requirements.
Qualitative data is inherently nuanced and deeply contextual. While it offers rich interpretive possibilities, its analysis and presentation often demand considerable resources. Moreover, due to its sensitivity, managing qualitative research data obtained from human subjects—such as interviews and observations— poses distinct ethical challenges. This handout delineates key considerations, practical tips, and available resources for effectively handling this data type across its lifecycle.